Sips of Sweetness

New Year’s eve was a hard day, Laura was more delirious, agitated, confused and weaker than before. But sometimes like a jack in the box she lights up, pops up and can hold a conversation.  The evening was full of those moments.  At 7pm the nurse brought in a little bottle of fizzy apple cider…

Laura’s artwork

In case you missed this in the comments, Elaine Souda posted this beautiful photograph of Laura’s (a Laura favorite) and wrote – “It was just an ordinary day at Washington Square Park but Laura shows us the extraordinary in the ordinary and we all become that little girl in the picture. This radiant image also captures Laura….

Saskia

This is my niece Saskia, one of our virtual bridesmaids.  Inspired by Laura’s illness and our journey, she is going to cut off all her lovely long blond hair to raise funds for a cancer charity in the UK.  She is also donating her tresses to make a wig for a cancer patient.  It is…

We are so blessed..

We are so blessed to have such an amazing team of doctors, Dr Wolchok, Dr Moryl and Dr Postow at Memorial Sloan Kettering working to make Laura comfortable and ease her distress.  Her meteorically fast tumors have out-paced lesser doctors ability to catch up with her new symptoms.  Today she has massive weakness in her…

Surrender

When Laura was told last week that she wouldn’t be going home again and only had days or at most a week or so to live, she said calmly, ‘I’m relieved.  I don’t need to fight any more.’  I wasn’t so calm.  Together we have cried a river of tears about being parted.  And I…

Lilies

The calla lilies Laura and I bought at City Hall when we got our marriage license in early December are incredibly still alive 3 and a half weeks later.  Not all of them.  Just two.  This little miracle gives us great pleasure. The clerk at City Hall in Manhattan told us that now even numbers…

Please help us

Laura is the most loved person I know.  It is astonishing to behold.  The outpouring of love for her has been breathtaking ever since she was diagnosed with cancer and particularly now that she is in hospital. Understandably everyone wants to come and visit.  Just a week ago, she would have loved to see her…

Our Wedding Video

To all our dear friends and family who we dreamed of having at our wedding, but couldn’t because Laura wasn’t well,  we invite you now to our very short –  but oh so sweet! –  marriage service. https://www.youtube.com/watch?v=Qkl7BGAHshI And the view from the UK via Skype (watch out for the cheeky bridesmaids and the confetti)…

In hospital

Today Laura and I are in Memorial Sloan Kettering’s inpatient facility for cancer patients.  Laura was admitted yesterday. Her pain management doctor was struggling to control her pain and nausea via phone and wanted her to come in to be monitored 24/7 to find a more effective drug combination.  Laura was vomiting up all her…

Merry Christmas

Merry Xmas dear friends and loved ones. Our love to you all, you’ve shown the most extraordinary kindness to Laura and I in our time of need.  We wish you a joyful, playful holiday season with your nearest and dearest. Be kind to one another, laugh, form good memories. That is all there is.

Together Forever

Laura woke up this morning and said ‘Come here. You are mine now!’  We’re both loving being married.  We had no expectations, none. But it’s no exaggeration to say we are over the moon.  It is as if the world revolves a little differently today –  lighter, gentler and sweeter. If we’d planned our wedding…

Mrs & Mrs

We got married today…! …more details to follow

Good Samaritans

Yesterday I lost my purse (that’s ‘pocket book’ if you live in the US) in the back of a taxi cab.  it contained nearly every vital bit of documentation Laura and I own and quite a bit of cash. A sweet man called Gregory called to say he had found it.  And when I picked…

Pain and Nausea

Laura’s pain has shot up swiftly these past 10 days and the doctor at the Visiting Nurse Service has had a hard time keeping up.  Laura started on just one Oxycodone pill a day last week. That worked for a little while, but then the pains just got worse and worse.  As more and more…

Having Hope

Laura – We are planning all these things that say I’m dying such as having the Visiting Nurse Services provide palliative care in our home and trying to decide whether to get married or not. I want to be linked to Lucie for eternity. We love each other so much.  But I’m very sad and depressed…